The Most Important Lesson
Author: Laura Anthony
Publisher: Morgan James Publishing
Our society is buckling under the demands of Alzheimer’s disease and dementia care, and now a simple but innovative approach has arrived. Laura Anthony relives the personal challenges she faced caring for own mother with the disease and the series of events that led her to develop a new emotional and touching strategy of interaction that delivers love, comfort, and meaning to both her mother’s life and her own. The goal of The Most Important Lesson is to provide the framework for caregivers and families to create a legacy of their own with their loved one and bring comfort, support, and greater meaning in the process. Society and future generations will benefit from the wisdom of our loved ones when following the guidelines contained in The Most Important Lesson.
Author: Sarah Leavitt
Publisher: Broadview Press
What do you do when your outspoken, passionate, and quick-witted mother starts fading into a forgetful, fearful woman? In this powerful graphic memoir, Sarah Leavitt reveals how Alzheimer’s disease transformed her mother Midge—and her family—forever. In spare black and white drawings and clear, candid prose, Sarah shares her family’s journey through a harrowing range of emotions—shock, denial, hope, anger, frustration—all the while learning to cope with a devastating diagnosis, and managing to find moments of happiness. Tangles confronts the complexity of Alzheimer’s disease, and gradually opens a knot of moments, memories, and dreams to reveal a bond between a mother and a daughter that will never come apart.
A Path Revealed
Author: Carlen Maddux
Publisher: Paraclete Press
Just days after turning fifty, Martha Maddux, a spirited mother and civic activist, was told she had Alzheimer’s disease. She and husband Carlen felt as though they’d been shoved out of a plane 10,000 feet up, with nothing to grab but themselves. A Path Revealed is not about the fallout from an insidious disease that extended over seventeen years. It is the story of a path of hope emerging during the darkest hours - a path that lifted Carlen and Martha above the devastating symptoms of this disease. Carlen traveled with Martha to the backwoods of Kentucky, where the quiet presence of a Catholic nun revealed a hidden path. He was forced to slow down as he traced this path halfway around the world to Australia, retreated weekends to a monastery, embraced meditation, and landed all alone in Thomas Merton’s cabin. This story conveys a message of hope and joy in the midst of an almost overwhelming tragedy.
The Theft of Memory
Author: Jonathan Kozol
A Library Journal Best Book of 2015 National Book Award winner Jonathan Kozol is best known for his fifty years of work among our nation’s poorest and most vulnerable children. Now, in the most personal book of his career, he tells the story of his father’s life and work as a nationally noted specialist in disorders of the brain and his astonishing ability, at the onset of Alzheimer’s disease, to explain the causes of his sickness and then to narrate, step-by-step, his slow descent into dementia. Dr. Harry Kozol was born in Boston in 1906. Classically trained at Harvard and Johns Hopkins, he was an unusually intuitive clinician with a special gift for diagnosing interwoven elements of neurological and psychiatric illnesses in highly complicated and creative people. “One of the most intense relationships of his career,” his son recalls, “was with Eugene O’Neill, who moved to Boston in the last years of his life so my father could examine him and talk with him almost every day.” At a later stage in his career, he evaluated criminal defendants including Patricia Hearst and the Boston Strangler, Albert H. DeSalvo, who described to him in detail what was going through his mind while he was killing thirteen women. But The Theft of Memory is not primarily about a doctor’s public life. The heart of the book lies in the bond between a father and his son and the ways that bond intensified even as Harry’s verbal skills and cogency progressively abandoned him. “Somehow,” the author says, “all those hours that we spent trying to fathom something that he wanted to express, or summon up a vivid piece of seemingly lost memory that still brought a smile to his eyes, left me with a deeper sense of intimate connection with my father than I’d ever felt before.” Lyrical and stirring, The Theft of Memory is at once a tender tribute to a father from his son and a richly colored portrait of a devoted doctor who lived more than a century. From the Hardcover edition.
Somebody I Used to Know
Author: Wendy Mitchell
Publisher: Ballantine Books
“A brave and illuminating journey inside the mind, heart, and life of a person with early-onset Alzheimer’s disease.”—Lisa Genova, author of Still Alice Wendy Mitchell had a busy job with the British National Health Service, raised her two daughters alone, and spent her weekends running and climbing mountains. Then, slowly, a mist settled deep inside the mind she once knew so well, blurring the world around her. She didn’t know it then, but dementia was starting to take hold. In 2014, at age fifty-eight, she was diagnosed with young-onset Alzheimer’s. In this groundbreaking book, Mitchell shares the heartrending story of her cognitive decline and how she has fought to stave it off. What lay ahead of her after the diagnosis was scary and unknowable, but Mitchell was determined and resourceful, and she vowed to outwit the disease for as long as she could. As Mitchell learned to embrace her new life, she began to see her condition as a gift, a chance to experience the world with fresh eyes and to find her own way to make a difference. Even now, her sunny outlook persists: She devotes her time to educating doctors, caregivers, and other people living with dementia, helping to reduce the stigma surrounding this insidious disease. Still living independently, Mitchell now uses Post-it notes and technology to remind her of her routines and has created a “memory room” where she displays photos—with labels—of her daughters, friends, and special places. It is a room where she feels calm and happy, especially on days when the mist descends. A chronicle of one woman’s struggle to make sense of her shifting world and her mortality, Somebody I Used to Know offers a powerful rumination on memory, perception, and the simple pleasure of living in the moment. Philosophical, poetic, intensely personal, and ultimately hopeful, this moving memoir is both a tribute to the woman Wendy Mitchell used to be and a brave affirmation of the woman she has become. Praise for Somebody I Used to Know “Remarkable . . . Mitchell gives such clear-eyed insight that anyone who knows a person living with dementia should read this book.”—The Times (London) “A landmark book . . . The best reward for [Mitchell’s] courage and candour would surely be fundamental changes in the way people with dementia are treated by society.”—Financial Times
The unflinching and hopeful story of one woman's journey into family caregiving, and a vivid overview of the challenges of Alzheimer's care. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves this compelling story of caregiving for her demented mother with a broad exploration of the causes of Alzheimer's disease, means of treating it, and hopes for preventing it. She shares the lessons she's learned over seven years of caregiving at home, in assisted living, a rehabilitation center, a "memory care" facility for people living with dementia, and a nursing home--lessons not just about how to navigate the system, but how caregiving helped the author to grow closer to her mother, and to learn to nurture her mother's spirit through the most advanced stages of dementia.
Author: Diane Keaton
Publisher: Random House
NAMED ONE OF THE TEN BEST BOOKS OF THE YEAR BY Janet Maslin, The New York Times • People • Vogue ONE OF THE BEST BOOKS OF THE YEAR —Financial Times • Chicago Sun-Times The Independent • Bookreporter The Sunday Business Post Mom loved adages, quotes, slogans. There were always little reminders pasted on the kitchen wall. For example, the word THINK. I found THINK thumbtacked on a bulletin board in her darkroom. I saw it Scotch-taped on a pencil box she’d collaged. I even found a pamphlet titled THINK on her bedside table. Mom liked to THINK. So begins Diane Keaton’s unforgettable memoir about her mother and herself. In it you will meet the woman known to tens of millions as Annie Hall, but you will also meet, and fall in love with, her mother, the loving, complicated, always-thinking Dorothy Hall. To write about herself, Diane realized she had to write about her mother, too, and how their bond came to define both their lives. In a remarkable act of creation, Diane not only reveals herself to us, she also lets us meet in intimate detail her mother. Over the course of her life, Dorothy kept eighty-five journals—literally thousands of pages—in which she wrote about her marriage, her children, and, most probingly, herself. Dorothy also recorded memorable stories about Diane’s grandparents. Diane has sorted through these pages to paint an unflinching portrait of her mother—a woman restless with intellectual and creative energy, struggling to find an outlet for her talents—as well as her entire family, recounting a story that spans four generations and nearly a hundred years. More than the autobiography of a legendary actress, Then Again is a book about a very American family with very American dreams. Diane will remind you of yourself, and her bonds with her family will remind you of your own relationships with those you love the most. Look for special features inside. Join the Circle for author chats and more.
Measure of the Heart
Author: Mary Ellen Geist
Publisher: Grand Central Publishing
Mary Ellen Geist decided to leave her job as a CBS Radio anchor to return home to Michigan when her father's Alzheimer's got to be too much for her mother to shoulder alone. She chose to live her life by a different set of priorities: to be guided by her heart, not by outside accomplishment and recognition. The New York Times wrote a front page story on Mary Ellen on Thanksgiving 2005. It was one of the most e-mailed stories for the month. Through her own story and through interviews with doctors and other women who've followed the "Daughter Track"--leaving a job to care for an aging parent--Geist offers emotional insights on how to encourage interaction with the loved one you're caring for; how to determine daily tasks that are achievable and rewarding; how the personality of the patient affects the caregiving and the progression of the diseases; as well as invaluable advice about how caregivers can take care of themselves while accomplishing the Herculean task of constantly caring for others. Geist's years in journalism allow her to report on Boomers' caretaking dilemmas with professional objectivity, and her warm voice brings compassion and insight to one of the most difficult stituations a son or daughter may face during his or her life.
The 36-Hour Day
Author: Nancy L. Mace, Peter V. Rabins
Publisher: JHU Press
Through five editions, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers address these challenges and simultaneously cope with their own emotions and needs. Featuring useful takeaway messages and informed by recent research into the causes of and the search for therapies to prevent or cure dementia, this edition includes new information on • devices to make life simpler and safer for people who have dementia• strategies for delaying behavioral and neuropsychiatric symptoms• changes in Medicare and other health care insurance laws• palliative care, hospice care, durable power of attorney, and guardianship• dementia due to traumatic brain injury• choosing a residential care facility• support groups for caregivers, friends, and family members The central idea underlying the book—that much can be done to improve the lives of people with dementia and of those caring for them—remains the same. The 36-Hour Day is the definitive dementia care guide. -- Jeffrey Cummings, MD, ScD, Director, Cleveland Clinic Lou Ruvo Center for Brain Health
The Alzheimer's Solution
Author: Dean Sherzai, Ayesha Sherzai
A revolutionary, proven program for reversing the symptoms of Alzheimer's disease and cognitive decline from award winning neurologists and codirectors of the Brain Health and Alzheimer's Prevention Program at Loma Linda University Medical Center Over 47 million people are currently living with Alzheimer’s disease worldwide. While all other major diseases are in decline, deaths from Alzheimer’s have increased radically. What you or your loved ones don’t yet know is that 90 percent of Alzheimer’s cases can be prevented. Based on the largest clinical and observational study to date, neurologists and codirectors of the Brain Health and Alzheimer’s Prevention Program at Loma Linda University Medical Center, Drs. Dean and Ayesha Sherzai, offer in The Alzheimer’s Solution the first comprehensive program for preventing Alzheimer’s disease and improving cognitive function. Alzheimer’s disease isn’t a genetic inevitability, and a diagnosis does not need to come with a death sentence. Ninety percent of grandparents, parents, husbands, and wives can be spared. Ninety percent of us can avoid ever getting Alzheimer’s, and for the 10 percent with strong genetic risk for cognitive decline, the disease can be delayed by ten to fifteen years. This isn’t an estimate or wishful thinking; it’s a percentage based on rigorous science and the remarkable results the Sherzais have seen firsthand in their clinic. This much-needed revolutionary book reveals how the brain is a living universe, directly influenced by nutrition, exercise, stress, sleep, and engagement. In other words: what you feed it, how you treat it, when you challenge it, and the ways in which you allow it to rest. These factors are the pillars of the groundbreaking program you’ll find in these pages, which features a personalized assessment for evaluating risk, a five-part program for prevention and symptom-reversal, and day-by-day guides for optimizing cognitive function. You can prevent Alzheimer’s disease from affecting you, your family, friends, and loved ones. Even with a diagnosis, you can reverse cognitive decline and add vibrant years to your life. The future of your brain is finally within your control.
Please Look After Mom
Author: Kyung-Sook Shin
WINNER OF THE MAN ASIAN LITERARY PRIZE When sixty-nine-year-old So-nyo is separated from her husband among the crowds of the Seoul subway station, her family begins a desperate search to find her. Yet as long-held secrets and private sorrows begin to reveal themselves, they are forced to wonder: how well did they actually know the woman they called Mom? Told through the piercing voices and urgent perspectives of a daughter, son, husband, and mother, Please Look After Mom is at once an authentic picture of contemporary life in Korea and a universal story of family love. From the Trade Paperback edition.
Where the Light Gets in
Author: Kimberly Williams-Paisley
Publisher: Three Rivers Press
"Many know Kimberly Williams-Paisley as the bride in the popular Steve Martin remakes of the Father of the Bride movies, the calculating Peggy Kenter on Nashville, or the wife of country megastar Brad Paisley. But in 2014, Williams-Paisley revealed a ... secret: her mother had been diagnosed with a rare form of dementia called Primary Progressive Aphasia at the age of sixty-one. In [this memoir], Williams-Paisley tells the full story of her mother's illness, from diagnosis through the present-day, drawing on her memories of her relationship with the fascinating, complicated, and successful woman who raised her"--
Before I Forget
Author: B. Smith, Dan Gasby, Michael Shnayerson
“I know where I’m going. I’m still myself. I just can’t remember things as well as I once did. So on short trips, I work hard not to be confused. I’ll say to myself, What are we going to do? How long are we staying? It’s like I’m talking to my other self—the self I used to be. She tells me, This is what we need to buy—not that. I’m conscious of that other self guiding me now.” Restaurateur, magazine publisher, celebrity chef, and nationally known lifestyle maven, B. Smith is struggling at 66 with a tag she never expected to add to that string: Alzheimer's patient. She’s not alone. Every 67 seconds someone newly develops it, and millions of lives are affected by its aftershocks. B. and her husband, Dan, working with Vanity Fair contributing editor Michael Shnayerson, unstintingly share their unfolding story. Crafted in short chapters that interweave their narrative with practical and helpful advice, readers learn about dealing with Alzheimer's day-to-day challenges: the family realities and tensions, ways of coping, coming research that may tip the scale, as well as lessons learned along the way. At its heart, Before I Forget is a love story: illuminating a love of family, life, and hope. From the Hardcover edition.
Bestselling author Sherman Alexie tells the story of Junior, a budding cartoonist growing up on the Spokane Indian Reservation. Determined to take his future into his own hands, Junior leaves his troubled school on the rez to attend an all-white farm town high school where the only other Indian is the school mascot. Heartbreaking, funny, and beautifully written, The Absolutely True Diary of a Part-Time Indian, which is based on the author's own experiences, coupled with poignant drawings by Ellen Forney that reflect the character's art, chronicles the contemporary adolescence of one Native American boy as he attempts to break away from the life he was destined to live. With a forward by Markus Zusak, interviews with Sherman Alexie and Ellen Forney, and four-color interior art throughout, this edition is perfect for fans and collectors alike.
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